DataStandardsWales-Patient

Overview

The Patient resource contains demographics and other administrative information about an individual receiving health or care-related services.

The DataStandardsWales-Patient profile is derived from the UK Core Patient Profile. It defines additional rules for use within health and care organisations in Wales.

Formal Views of Profile Content

url1..1System.StringFixed Value
valueAddressAddress
birthSexI0..1Extension(code)
url1..1System.StringFixed Value
valueBooleanboolean
contactPreferenceI0..1Extension(Complex)
deathNotificationStatusI0..1Extension(Complex)
ethnicCategoryS I0..1Extension(CodeableConcept)
residentialStatusI0..1Extension(CodeableConcept)
url1..1System.StringFixed Value
valueBooleanboolean
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
nhsNumberVerificationStatusI0..1Extension(CodeableConcept)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
activeS Σ ?!0..1boolean
useΣ ?!0..1codeBinding
textΣ0..1string
familyΣ0..1string
givenΣ0..*string
prefixΣ0..*stringBinding
suffixΣ0..*string
periodΣ I0..1Period
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
genderS Σ0..1codeBinding
url1..1System.StringFixed Value
valueDateTimedateTime
deceasedBooleanboolean
deceasedDateTimedateTime
addressKeyI0..*Extension(Complex)
useΣ ?!0..1codeBinding
typeΣ0..1codeBinding
textΣ0..1string
lineΣ0..*string
cityΣ0..1string
districtΣ0..1string
stateΣ0..1string
postalCodeS Σ0..1string
countryΣ0..1string
periodΣ I0..1Period
maritalStatusS0..1CodeableConceptBinding
multipleBirthBooleanboolean
multipleBirthIntegerinteger
photoI0..*Attachment
contactRankI0..1Extension(positiveInt)
copyCorrespondenceIndicatorI0..1Extension(boolean)
relationship0..*CodeableConceptBinding
name0..1HumanName
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
address0..1Address
gender0..1codeBinding
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
periodI0..1Period
url1..1uriFixed Value
valueCodingCoding
url1..1uriFixed Value
valueCodingCoding
url1..1System.StringFixed Value
languageS1..1CodeableConceptBinding
preferred0..1boolean
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
typeΣ1..1codeBinding
url1..1System.StringFixed Value
valueAddressAddress
birthSexI0..1Extension(code)
url1..1System.StringFixed Value
valueBooleanboolean
contactPreferenceI0..1Extension(Complex)
deathNotificationStatusI0..1Extension(Complex)
ethnicCategoryS I0..1Extension(CodeableConcept)
residentialStatusI0..1Extension(CodeableConcept)
url1..1System.StringFixed Value
valueBooleanboolean
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
nhsNumberVerificationStatusI0..1Extension(CodeableConcept)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
activeS Σ ?!0..1boolean
useΣ ?!0..1codeBinding
textΣ0..1string
familyΣ0..1string
givenΣ0..*string
prefixΣ0..*stringBinding
suffixΣ0..*string
periodΣ I0..1Period
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
genderS Σ0..1codeBinding
url1..1System.StringFixed Value
valueDateTimedateTime
deceasedBooleanboolean
deceasedDateTimedateTime
addressKeyI0..*Extension(Complex)
useΣ ?!0..1codeBinding
typeΣ0..1codeBinding
textΣ0..1string
lineΣ0..*string
cityΣ0..1string
districtΣ0..1string
stateΣ0..1string
postalCodeS Σ0..1string
countryΣ0..1string
periodΣ I0..1Period
maritalStatusS0..1CodeableConceptBinding
multipleBirthBooleanboolean
multipleBirthIntegerinteger
photoI0..*Attachment
contactRankI0..1Extension(positiveInt)
copyCorrespondenceIndicatorI0..1Extension(boolean)
relationship0..*CodeableConceptBinding
name0..1HumanName
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
address0..1Address
gender0..1codeBinding
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
periodI0..1Period
url1..1uriFixed Value
valueCodingCoding
url1..1uriFixed Value
valueCodingCoding
url1..1System.StringFixed Value
languageS1..1CodeableConceptBinding
preferred0..1boolean
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
typeΣ1..1codeBinding
url1..1System.StringFixed Value
valueAddressAddress
birthSexI0..1Extension(code)
url1..1System.StringFixed Value
valueBooleanboolean
contactPreferenceI0..1Extension(Complex)
deathNotificationStatusI0..1Extension(Complex)
ethnicCategoryS I0..1Extension(CodeableConcept)
residentialStatusI0..1Extension(CodeableConcept)
url1..1System.StringFixed Value
valueBooleanboolean
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
url1..1System.StringFixed Value
valueCodeableConceptCodeableConcept
nhsNumberVerificationStatusI0..1Extension(CodeableConcept)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ1..1uriFixed Value
valueΣ1..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(Organization)
activeS Σ ?!0..1boolean
useΣ ?!0..1codeBinding
textΣ0..1string
familyΣ0..1string
givenΣ0..*string
prefixΣ0..*stringBinding
suffixΣ0..*string
periodΣ I0..1Period
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
genderS Σ0..1codeBinding
url1..1System.StringFixed Value
valueDateTimedateTime
deceasedBooleanboolean
deceasedDateTimedateTime
addressKeyI0..*Extension(Complex)
useΣ ?!0..1codeBinding
typeΣ0..1codeBinding
textΣ0..1string
lineΣ0..*string
cityΣ0..1string
districtΣ0..1string
stateΣ0..1string
postalCodeS Σ0..1string
countryΣ0..1string
periodΣ I0..1Period
maritalStatusS0..1CodeableConceptBinding
multipleBirthBooleanboolean
multipleBirthIntegerinteger
photoI0..*Attachment
contactRankI0..1Extension(positiveInt)
copyCorrespondenceIndicatorI0..1Extension(boolean)
relationship0..*CodeableConceptBinding
name0..1HumanName
otherContactSystemI0..1Extension(Coding)
valueΣ0..1string
useΣ ?!0..1codeBinding
rankΣ0..1positiveInt
periodΣ I0..1Period
address0..1Address
gender0..1codeBinding
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
periodI0..1Period
url1..1uriFixed Value
valueCodingCoding
url1..1uriFixed Value
valueCodingCoding
url1..1System.StringFixed Value
languageS1..1CodeableConceptBinding
preferred0..1boolean
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
referenceΣ I0..1string
typeΣ0..1uriBinding
useΣ ?!0..1codeBinding
typeΣ0..1CodeableConceptBinding
systemΣ0..1uri
valueΣ0..1string
periodΣ I0..1Period
assignerΣ I0..1Reference(UK Core Organization)
displayΣ0..1string
typeΣ1..1codeBinding

Mandatory and Must Support Data Elements

When an element is mandatory (min=1), the data is expected to always be present. Elements marked with an S must be supported by both producing and receiving systems and SHOULD be populated if the data exists.

Each Patient record must support:

  • A patient identifier
    • This field SHOULD include at least one patient identifier:
    • NHS Numbers are to be be provided if available. Use the UKCore-NHSNumberVerificationStatus to indicate the trace status.contain all available identifiers.
    • Other patient identifiers can also be included where known e.g., Welsh Demographic Service or Health Board PAS identifiers.
    • Identifier systems should use the NamingSystem URIs which are defined in the guide rather than OIDS.
  • Address and contact information
  • The status of the patient record (i.e., whether is still active )
  • A deceased indicator

The following Core Reference Data Standards defines standards for the following elements, which are also marked as must be supported:

  • religion
  • language
  • ethnicity
  • postcode
  • marital status*
  • sex*
  • gender*

* When populating these fields implementers are required to use the codes defined by HL7. Concept maps are provided below to indicate required mappings to and from Wales codes for gender identity, sex and marital status as defined in the Core Reference Data Standards published by the Welsh Information Standards Board.

Extensions

The extensions listed below are those created to support Data Standards Wales:

  • DataStandardsWales-Religion defined in the NHS Wales Data Dictionary.
  • DataStandardsWales-Occupation Patient.extension:occupation this uses a SNOMED CT reference set.

Note: this list does not include extensions provided by UK Core and you should refer to their implementation guide for support

Slices

The following identifier slices for use with the patient profile are listed below. The namespaces denoting issuing authority for each identifier are defined on the Naming Systems page. NHS numbers are further described in the NHS Wales Data Dictionary.

  • Patient.identifier:nhsNumber
  • Patient.identifier:abuhbPasIdentifier
  • Patient.identifier:bcuhbCentralPasIdentifier
  • Patient.identifier:bcuhbEastPasIdentifier
  • Patient.identifier:bcuhbWestPasIdentifier
  • Patient.identifier:cavuhbPasIdentifier
  • Patient.identifier:ctmuhbPasIdentifier
  • Patient.identifier:hduhbPasIdentifier
  • Patient.identifier:pthbPasIdentifier
  • Patient.identifier:sbuhbPasIdentifier
  • Patient.identifier:vunhstCaniscIdentifier

Terminology Bindings (differential)

This profile defines the following terminology bindings in addition to those defined in UK Core.

Concept Maps

The following concept maps provide a mapping to and from UK Core / HL7 codes to Data Standards Wales codes:

Concept Mapping for HL7/UK Core codes to Data Standards Wales codes Mapping for Data Standards Wales codes to HL7/UK Core codes
Marital status DataStandardsWales-UKCorePersonMaritalStatusCode-MaritalStatus DataStandardsWales-MaritalStatus-UKCorePersonMaritalStatusCode
Gender identity DataStandardsWales-HL7AdministrativeGender-GenderIdentity DataStandardsWales-GenderIdentity-HL7AdministrativeGender
Sex DataStandardsWales-UKCoreBirthSex-Sex DataStandardsWales-Sex-UKCoreBirthSex